August 27th
"Understanding Energy for a Cure" Symposium
6:00pm - 8:30pm
Room 1013 at the Morsani Center for
Advanced Healthcare at USF Health, 13330 USF Laurel Drive, Tampa,
FL 33612.
A special symposium and discussion at
University of South Florida with presentations from the medical, scientific,
advocacy, and patient communities to share insights into Friedreich's
ataxia and related conditions. The symposium, sponsored by the
Friedreich's Ataxia Research Alliance (FARA) and the USF Ataxia Research
Center (ARC), is free and open to the public.
Agenda and Speakers:
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6:00 - 6:20 PM
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Reception
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6:20 - 6:30 PM
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Welcome and Introduction
Dr. Stephen Klasko, CEO for USF Health and Dean of the College of Medicine
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6:30 - 6:50 PM
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The Challenges and Promise of Rare Disease Research
Dr. Jeffrey Krischer, Professor and Director of the USF Pediatrics Epidemiology Center
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6:50 - 7:15 PM
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A Case Study in Friedreich Ataxia
Jennifer Farmer, Executive Director, FARA
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7:15 - 7:40 PM
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Treatment of FA: Patient Treatment and Care
Dr. Theresa Zesiewicz, Professor of Neurology & Director of the USF ARC
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7:40 - 8:00 PM
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The Role of an Advocacy Organization
Ronald Bartek, President, FARA
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8:00 - 8:30 PM
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Panel Discussion: The Patient Perspective
Moderator: Dr. Stephen Klasko
Patients: Kyle Bryant, Nygel Lenz and Avery Zaritsky
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