August 26th
Cultivating a Cure - Scientific Symposium
The Marshall Student Center
Ballroom C
4103 Cedar Circle
University of South Florida
Tampa
6:00 pm – 8:30 pm
A special interactive symposium with the medical,
scientific, advocacy and patient communities to
share insights into energizing the cure for Friedreich’s
Ataxia and related disorders. Rare diseases, such
as Friedreich’s Ataxia, affect more than 25 million
people in the United States. We will explore the
challenges and opportunities in understanding these
conditions, moving research forward, discovering
treatments, and living with such a disease.
Agenda and Speakers:
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5:00pm – 6:00pm
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Poster Session / Cocktail Hour
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6:00pm – 6:10pm
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Welcome and Introduction
Stephen Klasko, MD, MBA Senior Vice President for USF Health Dean, USF College of Medicine
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6:10pm – 6:30pm
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FARA Scope of Progress
Ronald Bartek, President, Director, Co-Founder & Jennifer Farmer, MS, CGC, Executive Director
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6:30pm – 6:50pm
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HDAC Inhibitors
Joel Gottesfeld, PhD Professor Dept. of Molecular Biology The Scripps Research Institute
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6:50pm – 7:10pm
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Varenicline Update
Theresa Zesiewicz, MD FAAN Professor of Neurology, Director USF Ataxia Research Center
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7:10pm – 7:30pm
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Guy Miller, MD, PhD Chairman and CEO Edison Pharmaceuticals, Inc
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7:30pm – 7:50pm
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Patient Panel Discussion
Moderator: Steve Klasko, MD, MBA Senior Vice President for USF Health Dean, USF College of Medicine
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7:50pm – 8:00pm
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Wrap-up and Closing Comments
Clifton Gooch, MD Professor and Chairman USF Department of Neurology
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