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FARAFARA Cure FA

Jacob Ferguson

JacobFergusonMy name is Jacob Ferguson. I am 22 years old and live in Montgomery, Texas with my family, including my 17 year old brother who also has FA. I am working on a business degree at LoneStar College and Sam Houston State University. I love to work out and work with a trainer at our local gym a few days a week.

I am always up for adventure. We just returned from a trip to Mexico. We had a blast! We were able to scuba dive in the resort dive pool, parasail over the ocean, and deep sea fishing all for the first time!

 

I was diagnosed with FA when I was in 2nd grade right around my 8th birthday. After my family had gone on a beach trip, my mom noticed I was unable to keep up with my cousins. We went to an orthopedic doctor when we got back to Texas who immediately referred us to a neurologist. We went to that appointment where I had to go through the general neurological tests ending with some blood work. Several weeks later, my parents were called into the office and given the diagnosis. I started using a wheelchair in 9th grade but still used my walker a lot.

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About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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