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FARAFARA Cure FA

Preston Lynch

 

Hey, my name is Preston Lynch. I’m 22 years old from south Texas. I am currently in college to be a junior high math teacher, and then I might go for my masters to teach college. I’m usually on the go. I have school, physical therapy, and a lot of homework to keep me busy. When I do I have a moment to rest I enjoy being with people who can make me laugh and I travel often, I just got back from a cruise to Mexico. The way I work out is at physical therapy, I got for 2 days a week in the school year and 3 days a week in the summer, but each visit is about 4 hours and I’m exhausted every time I leave the clinic.

I do not walk anymore unless I’m at physical therapy. I was diagnosed at 12 and refused to admit it for a few years but I made a few friends that showed me that my physical appearance doesn’t matter to them and now I’m more than happy to tell people I have FA and then tell them about it. I had a tendon release on both of my Achilles last summer and it was the most painful thing ever, but the results are incredible. It made standing up and walking with a walker possible. I only have 1 thing to say about surgery, don’t do it until you’re sure you want to. I had the option to do it 2 years prior but never felt like I needed it, then my ankle constantly started to hurt and I knew it was time. I love the FA community and made some best friends who have FA, they’re the best.
 
 

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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