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FARAFARA Cure FA

Vlad Ayriyan

VladAyriyanHello, my name is Vlad Ayriyan, I am 24 years old. I was diagnosed when I was 9 years old and was wheelchair bound at the age of 16. I live in the best city in the world, San Diego. I was born in Armenia and that is where my family is from. I used to love playing sports, especially basketball but as the disease progressed I had to adapt to not being able to play the sport that I love. I had to adapt to a new way of my love for sports by studying the game.

I have a sister who is 19 years old and very supportive of me. She is unaffected by the disease but she is still a carrier. Knowing this definitely, helps me want to put an end to this. I do not want to only do this for myself but for those affected by this disease, along with their family and the people who support them.

This disease taught me a lot of lessons about life, but I think I have learned enough and it is time to put an end to this and find a cure. 

 

VladAyriyan sig 16


About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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