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FARAFARA Cure FA

12th Annual Fuzzy Buzzy Golf Tournament

2015FuzzyBuzzy1Another successful year, raising $16K! For the last 12 years every second Sunday in September is the Fuzzy Buzzy Golf Tournament. I am always overwhelmed and amazed by all the support and generosity I experience. This year started in the typical fashion (aside from the rain); me being nervous and excited, and my aunts running around setting up raffles and getting ready for 12 noon registration. As golfers arrive so did some of my local friends who are also dealing with FA. We greeted the 130 players, wished them luck, reminded them why they were golfing, and saw them off for their day of golf. 

2015FuzzyBuzzy2My friends and I headed into the clubhouse for some lunch. After lunch we had an informal Q&A and informational session with Jen Farmer, Executive Director of FARA. Jen traveled from Philly to show her support, raise awareness and share her expertise about FA and FARA. She was great as always.

After lunch we headed up to the tee, where teams stop by for a putting contest and/or a good ol’ hot dog. Several of my non-golfing friends and family members stopped by to visit, huddled under the tent, bought some raffles, and showed their support.

Golfers started coming in around 5pm, so we headed back into the clubhouse for dinner, tournament winners, raffle winners and speeches. This year we had a speech from Alex Fielding, fellow Ambassador Program member and first time participant in the Fuzzy Buzzy. Alex did great job and had a great impact on the crowd. Alex had golfed all day with the others and his story was one that they all could relate to. I am very proud to call him a friend.

The Fuzzy Buzzy is the oldest annual golf tournament raising funds for FARA. From where FARA's awareness and research was 12 years ago to where it is now is nothing short of incredible. I feel lucky to have a wonderful family supporting me with each step, or in my case push.

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The Monday after the Fuzzy, I always take the day off to relax. This year I was invited by a close family friend, to speak with his classmates at the Massachusetts College of Pharmacy and Health Sciences. Jen Farmer joined us via Webex so she could use more medical lingo with the room of 70 Physician Assistants. The talk went really well. I gave my personal story and Jen complemented me with slides, facts, and the medical terms that are over my head! Thank you Jen!! I got a lot of positive feedback from the group and was happy to make these students more aware of Friedreich’s Ataxia.

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About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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