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FARAFARA Cure FA

2016 Century 21 Charity Golf Tournament

2016Century21GolfOn September 22nd, 2016, Josh Lamascus and his family held the 7th annual Century 21 Charity Golf Tournament benefitting FARA, in Fontana, California. Josh explains, “when I was diagnosed, we were hit with a wave of emotion and we didn’t know what to do. My dad called our family friend, Julio Cardenas. Julio runs a Century 21 office in Rancho Cucamonga, California, and they had held an annual golf fundraiser. My dad asked Julio if he would be willing to change the beneficiary of the golf tournament to FARA. Julio happily obliged and that’s how we ended up here.” 

The tournament was a great success again this year, and raised over $25,000 for FARA. There were over 150 golfers, and 200 guests for the dinner part of the evening. The dinner included a raffle, a live auction, a couple speakers, and many other fun events. The two speakers were Kyle Bryant and Josh. The crowd responded greatly to both speeches with standing ovations. Kyle spoke about a ride in which he was facing a daunting hill. He then compared that hill to the battle that we face as members of the FA community: we face the challenge head on and we’re not going to stop until we overcome it.

To date, Josh and his family have raised over $150,000 for Friedreich’s Ataxia research through this tournament. The event is held on a Thursday in late September each year at Sierra Lakes Golf Course in Fontana, California. Josh says, “we are lucky enough to have the support of Julio Cardenas and the rest of the Century 21 King family.”

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About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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