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FARAFARA Cure FA

2016 FA Awareness Day Video Clip Campaign

FA Awareness Day is all about raising awareness! We’d like to introduce a video clip campaign to raise the bar on raising awareness and we want YOU to join us! What would you share with someone who’s never heard of Friedreich’s Ataxia? Maybe a quick fact or something a little more personal? Here’s how you get involved...Shoot it! Send it! Share it! And that’s it! Sounds like a simple way to spread awareness, right? Oh wait, maybe there are a few more details…

  • SHOOT IT…grab your phone and shoot a quick video (15-30 seconds). Start with your name and “I have Friedreich’s Ataxia.” Share one thing you really want people to know about FA or life with FA. Keep it short and straightforward. End with “To learn more, visit curefa.org.”
  • SEND IT…Send the video straight from your phone to us via Dropbox no later than 5pm EST Thursday, May 19th.
  • SHARE IT…we will be post your video on the FARA Facebook page on Saturday, May 21st, FA Awareness Day! When you see your video on the FARA page, SHARE IT on your timeline and encourage all of your friends to do the same. Why? Awareness, of course! ;)

One last thing…the top two videos with the most shares by Friday, May 27th @midnight EST will each WIN a rideATAXIA VIP package including ride registration for one to any location (Dallas, Atlanta, NorCal, Chicago, Philly, Orlando), a rideATAXIA jersey, rideATAXIA shirt and a pair of rideATAXIA socks! Nothing better than a little friendly competition to sweeten the deal! ***Only shares of FARA's video posts count towards the eligible share count.**

We’d love to see videos from both FA patients and all of our wonderful supporters in the FA community! Does your son/daughter/sister/brother/mom/dad/boyfriend/girlfriend/wife/husband/friend/co-worker/etc. have FA? SHOOT IT…SEND IT…SHARE IT...WIN IT! We can’t wait to see all of your videos!

dropbox

Questions? stephaniejmagness@gmail.com

KB FAAD intro 2016

We can't wait to see and SHARE your videos! TOGETHER WE WILL CURE FA! 

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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