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FARAFARA Cure FA

3rd Annual Costume for a Cure

CostumeforaCure2017The 3rd annual Costume for a Cure was held on November 4, 2017. Costume for a Cure is an annual fundraiser, hosted by me, Chelsea Conley, in St. Clairsville, Ohio (near WV and PA). It consists of Halloween Costumes, a DJ, dancing, dinner, and Chinese Auctions. This year there was also face painting and Jingles, the balloon artist. We also had a 50/50 this year. The winner received $300 and donated $100 back.

ALL proceeds go to FARA for research for a cure/treatment for Friedreich's Ataxia (FA). This year's theme was Hocus Pocus, so there were witch decorations and witch themed desserts. The dinner menu consisted of chicken, ham, hot dogs, stromboli, cheesy potatoes, green beans, and calico beans.

Everything was delicious and the night was very enjoyable. There were five people with FA present; Beth Hanes, Lilly Lucas, Drake Hampp, Ashlea Smith and myself. Ashlea gave an excellent speech about FA on behalf of the FARA Ambassadors.

Costume for a Cure raised almost $8,000 this year! 

Even though we take a break between the end of CFAC and the beginning of the year, next year's theme, date, and location are already planned! Next year it will be held on October 20, at Flushing Fire Hall in Ohio, with the theme of Super Heroes VS Villains. Even though we set a theme, we do not expect anyone to dress up to the theme or even at all. I hope to see the same and more of my FAmily next year! Save the date, call off work, and start saving money for travel expenses & raffles, because we look forward to seeing you next year!

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About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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