Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

FARAFARA Cure FA

4th Annual Slim's Journey Run and Walk

Held in Warrenton, Eastern Missouri, ”Slim’s Journey” raised $19,000 on September 12, 2015 for FARA!

SlimsJourney1Slim's Journey is held each year in September.  This year was the fourth annual event, with nearly 300 attendees this year.  The event is a 5k run / 2.5k walk, and participants could register for either event.  The 5k competitors vied for honors along gender line; top male finisher and top female finisher, along with top three finishers in specific age and gender brackets.  Along the route, information about FA was available; including a personal account of challenges faced by an individual with FA.

Slim’s Journey has raised a total of $89,000 for FARA. Next year marks the fifth year of the event, and a huge milestone for the event organizers. We hope to meet our $100,000 fundraising goal. 

 

It was June 2011 when our family learned of Friedreich's ataxia.  We were not fortunate enough to learn of the disease through an article, a blog, or an event.  We learned the hard way, with a neurologist  giving us the name as the diagnosis for our 16 year old son.  On that day, it felt as if we hit a brick wall going 60 miles per hour.  

Putting this event together with my family has allowed me to move through my grieving process and strengthen my relationship with God.  I absolutely want there to be a cure for FA but more importantly, I want others to know nothing is impossible when God is in it.

Slim's Journey is our Journey of Hope.

juliemyerscommunitysignaturSlimsJourney2

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

More articles from this author

SHARE

FacebookTwitterLinkedinShare on Google+
Event A.jpg

 

Archived in
  the Ambassador Blog