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FARAFARA Cure FA

6th Annual Striking Courage Bowlathon

On Saturday, April 18 The FA Project held their 6th Annual Striking Courage Bowlathon at Candlewood Lanes in North Reading Massachusetts. It was a great night. There was laughing, there was bowling, there was air guitar and there were inspirational stories. It was a great fundraiser for a great cause. 

For those of you that don't know The FA Project, it is a nonprofit that helps people with FA live better. Some of the work they've done recently is: 

  • providing hand controls and lessons for an FA  patient;
  • giving annually to FARA’s Ataxian Athlete Initiative (AAI);
  • partnering with Project Wheels to give a man a motorized scooter;
  • helping people attend the FA Symposium in Philadelphia;
  • giving annually to FARA;
  • and more.

Everyone had a great time, including me. I met up with some college friends there and they never fail to keep me laughing and in the moment. As usual, we had great food from Kelly's Roast Beef and yummy desserts donated by Anna’s Sweet Treats, a friend of the Currier family. I made sure I was there early to get some of that food! It was a 21+ event with beer donated from Sam Adams Brewery. My favorite new edition was delicious sangria served in the bar. As in past years, there was a raffle with some really good prizes, people sponsored lanes,  T-shirts, and a DJ. This year they introduced a silent auction that was very successful. Luckily for those of us who are oldsters, the DJ played lots of 80s music.

Not only was the event super fun, but they raised a bunch of money so they can keep up the good work. They raised over $12,000 that night. The FA Project had a goal of getting all the bowling lanes sponsored and they did -- 24 of them at least $100 each. One monumental lane sponsor was Ryan Durkee. He also has FA. He had a goal of being a platinum lane sponsor at $400. So he started a Go Fund Me campaign and got $2150 which he presented to the FA project that night. This "blew them out of the water."

This event happens through the support of many generous donors and volunteers, but it would not be possible without the generosity of Carol and her staff at Candlewood Lanes.

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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