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FARAFARA Cure FA

Ambassador Program Applications 2017

Apply AP 2017FARA Ambassadors are FA patient volunteers who bridge the gap between research, patient care and awareness of Friedreich’s Ataxia. Ambassadors are positive and supportive, peer representatives for the FA community dedicating their time and effort to raise awareness and funds for FARA.

The FARA Ambassador Program (AP) meets on the first Thursday of each month via WebEx. A large contributing factor to the effectiveness and success of this program is being present and active. Planning committees and project resposibilities are determined at the meetings along with sharing of research updates and FARA news.

The AP focuses on several different projects throughout the year. Some examples include:

- Contributing posts to the Ambassador Program blog (curefa.org/ambassadors)
- Writing thank you cards to donors and organizers for FARA events
- Monthly FA Hangouts
- Speaking at fundraisers, community events, pharmaceutical/research organizations
- Fundraising
- Awareness: Rare Disease Day, FA Awareness Day, International Ataxia Awareness Day
- Communicating with newly diagnosed families
- Helping others in the FA community with their fundraising projects 

How do I get involved?

Spend some time to read the description of the program at the beginning of the application here: https://goo.gl/forms/JbjJXYnZIJ8ydznp1. Consider how the roles and responsibilities might fit in with your life and schedule. Choose the appropriate commitment level for your situation.  Then fill out the rest of the online application and click submit!  Someone from the AP Leadership will be in touch with you for the next steps.  The application deadline is Friday, May 5th.

Questions? info@curefa.org

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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