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FARAFARA Cure FA

Curtain Call for a Cure

Over the past several months, students from South Dakota have been working on a project called Fine Arts for Friedreich’s Ataxia or “FA for FA.” FA for FA is an entirely student created and run organization that has partnered with several local businesses to raise money and awareness for FA.

The idea for this project began with a high school freshman named Raena Brendtro, a fellow musical theater performer in Sioux Falls, SD. Raena was diagnosed with Friedreich’s Ataxia (FA) on May 30, 2013.

FAforFA CurtainCallforaCURE

FA for FA held their first event, Curtain Call for a Cure, on June 17th, and it was a complete success. During this event, a group of 20 high school aged students staged several musical theater numbers from well known musicals. Between the songs, information about FA, the symptoms, possible causes, and current cure research, was presented to the audience. The evening culminated with a speech from Raena herself, where she shared her personal struggles with the physical and social hardships of living with FA.

Through the support we received from local news stations (KSFY and KELO), the paper (The Argus Leader), and the Sioux Empire Community Theatre, we certainly met our goal of raising awareness about what FA is and how it affects people. Together we can cure FA!

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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