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FARAFARA Cure FA

FA Hangouts

Come join us for FA hangouts! Once a month the Ambassador Program hosts a series of online hangouts for people with FA to talk to each other for an hour and a half. We pick a topic that will be relevant to people in the FA community. Topics include things like exercise and fitness, setting and pursuing your goals, or clinical trial participation. Sometimes we invite guests from the community to share their experiences and personal expertise.

We like to keep a relaxed and friendly atmosphere in the hangouts. We have plenty of regulars, and there are always new faces, as well. You can come in with lots to say or just sit back and listen to other people's stories. FA is rare, but the hangouts are a great opportunity to connect with people you wouldn't otherwise get a chance to meet. We get people from all over the United States and even around the world who can all relate to each other's experiences. We laugh, we connect, we hang out, we learn from and about each other...it's a lot of fun!

See what other people have to say about hangouts about hangouts!

Hangouts usually happen at (new time)  8PM - 9:30PM Eastern on the last Wednesday and Thursday of each month (just one longer hangout per night). Check the Ambassador Program blog for each month's topic or see our schedule of upcoming hangouts. To sign up, send an email to fahangouts@gmail.com with the times you can attend. You will get an email with an invitation link to join the hangout. Hangouts are hosted on Google+ (get a free account at plus.google.com) and should work with any webcam and every major web browser.

 

 

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About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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