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FARAFARA Cure FA

FA Hangouts 7

The FARA Ambassador Program presents the seventh FA Hangout with the theme of: What Do You Do for Fun?
 
We have had several rounds of successful FA hangouts. We laughed, we connected, we hung out, we learned from and about each other...it was so fun! 
 
This month’s hangout is open to anyone with FA and a translator if needed. Tell us what you do for fun, why you love it, any practical ways you make it happen with FA or just get inspiration from others by learning what they do. Hangouts will be held Wednesday July 29 and Thursday July 30 (mark your calendars, FA Hangouts will be the last Wednesday and Thursday of the month, except on holidays and the like) at 7 & 9PM EST both days. More times will be added if needed. Email Mary at mary.bircher@gmail.com to sign up. 
 
Please indicate if there are any times that do not work for you and which times you’d prefer. We will try to accommodate everyone.
 
An email will go out 30 minutes prior to your assigned time with a link to join the Hangout. Feel free to come early for a pre-hang. We will open the hangout room a half hour early, but the topic conversations will begin at the top of the hour
 
See you soon!
 

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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