Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

FARAFARA Cure FA

FA Indy Family Fun Walk/Run

FAIndyWe had an amazing turnout for our first annual Family Fun Walk/Run. We were able to meet other families who are traveling through the FA journey with us. A special thank you goes to all of those who helped get this event off the ground and to those who volunteered their time to make everything run smoothly.

We had a bit of a challenge as our original course was flooded from a heavy rain the day before. But two of our volunteers regrouped and came up with another course. The day of the event was perfect. 

 

We had four with FA who were at the event. They and their families want to keep meeting through the year. We made a promise to them that we will do that. We all had a great time.

Find us on Facebook...facebook.com/FAIndianapolis.

bobschlagetercommunitysigna

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

More articles from this author

SHARE

FacebookTwitterLinkedinShare on Google+
Family D.jpg

 

Archived in
  the Ambassador Blog