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FARAFARA Cure FA

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure.  Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews etc.

The Mission of the FARA Ambassador's Group is to support FARA by:

  • Being leaders in the FA community.
  • Representing FARA whenever possible.
  • Sharing and finding different opportunities to share our personal stories with new and existing audiences.
  • Educating ourselves and others about the scope and impact FARA has on our lives, communities and beyond.

Goals:

  • To support each other as a team.
  • To have meetings via the web during which we will:
    • Discuss our stories.
    • Discuss opportunities to generate interest in FARA.
  • To have each member speak at FARA events.
  • To continuously tighten our bond as a group.
  • To have fun.

 

This blog is a vehicle for the voice of the FARA Ambassadors group and will feature posts from FARA Ambassadors on a wide range of topics.

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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