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FARAFARA Cure FA

Flatbread Benefit Night 2015

Have you ever been to Flatbread Restaurant? Every Tuesday night they have a benefit night for a different charity with a portion of every pizza sale going directly to a specific charity.

This year our benefit was May 5th, about $1,800 was raised that night.

Having this fundraiser is a no brainer. We have fun, we raise money for FARA, and all I have to do is invite friends and family for dinner!

This was my fifth year "hosting" the event. This year and last year a friend of mine donated a keg of beer.

The entire sale of the Wacheusett summer ale went to FARA. My uncle provided live entertainment. It was a great night.

FARA is making so much progress in research and finding a treatment and eventually cure. I have some serious heart issues excluding me from most clinical trials currently in progress. Because I am unable to participate in trials, I try to do my fair share in fundraising so FARA can continue this very important work.  The funds may go to FARA, but the benefits are for all of us.

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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