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FARAFARA Cure FA

Friedreich's Ataxia Awareness Day 2017

FAAD 2017 graphicA picture is worth a thousand words. Make a simple but bold statement on FA Awareness Day (Saturday, May 20) with a picture that says it all! #CureFA. It's what we're hoping for and working towards. It's our rally cry, our motivation, our mission, our goal. Join us and let's tell the world...TOGETHER let's #CureFA.

We'd like to introduce a #CureFA photo campaign. It's easy to participate, and we want YOU to join us! No matter where you are in the world or how you are tied to the community, our common collective goal is to #CureFA. Here's how to get involved...find a photo setting that is representative of your geographical region, your work, your favorite hobby or your community; take a photo of yourself with the #CureFA printout sign (link below) or create your own; send it to stephanie.magness@curefa.org Set it! Snap it! Send it! Share it! 

So, how do you participate? 

 

SET IT....Get creative. Set your photo somewhere that tells us something about you. Take a photo doing your favorite outdoor activity or with your biggest supporters or that represents your corner of the world.
SNAP IT...grab your phone and snap your #CureFA photo.
SEND IT...send your photo to stephanie.magness@curefa.org no later than 5pm EST Friday, May 19th.
SHARE IT...we will be post your pictures in a series of shareable collages on the FARA Facebook page on Saturday, May 20th, FA Awareness Day! When you see your photo on the FARA page, SHARE IT on your timeline and encourage all of your friends to do the same. Why? Awareness, of course! ;)

Click the picture for a printable version of the #CureFA sign,

FAAD2017 web

We'd love to see photos from both FA patients and all of our wonderful supporters in the FA community! Does your
son/daughter/sister/brother/mom/dad/boyfriend/girlfriend/wife/husband/friend/co-worker/etc. have FA? SET IT...SNAP IT....SEND IT...SHARE IT! We can't wait to see all of your photos!

Questions? stephanie.magness@curefa.org

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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