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FARAFARA Cure FA

Fuzzy Buzzy 2013

September 8, 2013 was our annual golf tournament in Windham, NH. For 28 years my Uncle Paul “Buzzy” Stanieich has been hosting this tournament. The first 18 years the Fuzzy Buzzy was an all guys, all day just for fun tournament. In 2004, Fuzzy Buzzy became the Fuzzy Buzzy Charity Golf Tournament with proceeds going directly to FARA.

Over the past 9 years we have raised $89,000. Our goal this year was to reach $100,000. I am happy to say, this year, the 10th year, we surpassed our goal. We raised $16,000, making our ten year total $105,000.

The day started at 11:30 with registration for the shot gun start at 1:00 on the dot. Players then had the option of buying a mulligan and raffle tickets before jumping in their carts. Each cart included the players goodie bag. The bags included, golf balls and tees with the FARA logo, water, snack, candy, FARA info cards, rules of the course and $10 off coupons to Golfsmith. With everyone in their carts, the course director went over a few rules, I made a few welcoming remarks,and they were off to start at their designated starting hole.

Once the golfing began, I could relax! I jumped in a golf cart with my cousins driving around greeting and thanking the golfers. Later a lot of us gathered at the putting green. This is where the players have a chance to win Red Sox tickets with their putting skills. Most of us who weren't golfing had fun hanging out here.

After 144 people golfed 18 holes they were quite hungry!! In the clubhouse they were served a delicious steak tip dinner with a yummy cake for dessert. After dinner we heard a few words from Buzzy, announced winners of golf and raffles, listened to a pre-recorded speech from Kyle Bryant which ended with roars from the crowd when Kyle poked fun at our Boston accents. Fellow FA Ambassador Jean Walsh had everyone in tears with her words, and got a standing ovation!

The weather was great, a tad windy but sunny and beautiful. It is always one of my favorite days of the year. I am overwhelmed with the outpouring of support from my amazing family and friends, even some people I had never met before.. I can't really put into words the feelings that come from all of this love, support, and knowing we are doing something so important.

Although the day went off without a hitch there was something missing. Fifteen years ago I started a friendship with a shy guy with FA from Maryland, fellow FARA Ambassador Tom Trovinger. It took me until 2005 before I convinced him to meet another person with FA and come to the Fuzzy Buzzy. He has not missed this tournament until this year. He had his plane tickets in preparation but suffered a massive stroke at the end of August. He was sorely missed, but know he has the strength, courage and support to get better and join us next year.

Erin

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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