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FARAFARA Cure FA

Happy New Year 2015!

2015

2014 In Review

2014 was a fantastic year full of wonderful and valuable experiences. The Ambassador Program took the first half of the year to re-focus and re-organize the program and it's goals to help the community. We are our excited about our renewed and refreshed direction and look forward to continuing to support FARA, our community and bring everyone together with hope for the future! In June, the Program blog was re-launched and it has been a growing success so far. We have loved featuring community members in “Spotlight” posts and blogs about so many awesome FARA fundraisers…grassroots events, Ride Ataxia, Team FARA, the Energy Ball and everything in between! Every Monday is a "Meet the Community” interview which gives members of our FA community opportunity to introduce themselves. We've met great new friends and are excited to meet more!

Our Card Outreach team has been very busy spreading gratitude and encouragement to mailboxes all over the country (and other countries too!). We’ve also loved the opportunity to connect with a few of the incredible pharmaceutical companies that have come along side FARA with passion and dedication to drug discovery and development. In December, we started "hangouts", which is openly available on Google for anyone living with FA to gather as a group via video chat to discuss certain topics pertaining to FA. The very first hangouts were a huge success, we’re looking forward to many more to come!

What are you looking forward to in 2015?! Be sure to post a comment below! Here’s what some of the FARA Ambassadors are looking forward to most in 2015:

steph2015

 

The FARA Ambassador Program would like to thank you for reading our blog and wish you and yours a very Happy New Year! Let's make 2015 the best yet!

 

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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