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FARAFARA Cure FA

Joseph Mullaney

Hello everyone, my name is Joseph Mullaney and I am extremely excited and honored to be apart of this program. I am 20 years old from Leominster, Massachusetts. I am a sophomore at Quinnipiac University in Hamden, Connecticut. At Quinnipiac, I am apart of a Fraternity, named Sigma Phi Epsilon, a member of the Student Government Association’s Executive Board as the Vice President for Public Relations, and a member of the Orientation Leadership Program, which helps welcome incoming students to Quinnipiac.
 
At home, I am one of four children from our parents, David and Brenda Mullaney. I have a twin brother named Sean, a 25 year old sister named Kaela, and a 26 year old brother named Ryan. Kaela and myself have FA and Sean and Ryan do not. However, Sean and Ryan always go out of their way to help Kaela and I, and will do anything to see this disease end. 
 
At Quinnipiac, I helped start the philanthropy event “Team FARA Ride Connecticut”, with the help of Mary Caruso and members of my Fraternity. We were fortunate to have about 70 bike riders in our 10 mile stroll while raising around $30,000 from the event for FARA. Being apart of that event, made me want to do more in the FA community to help more people become aware of what FA is. I am motivated to spread the awareness of FA and help scientists come closer to finding a cure!
 

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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