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FARAFARA Cure FA

More Than Pizza

2018FlatbreadI feel each day we hear of yet another breakthrough. We are coming closer and closer to the cure. Although I am not eligible for many “active drug” trials, I still want to contribute. As I wait, I do all I can to help FARA keep going by fundraising and raising awareness.

Everyone needs to eat dinner so why not have pizza and beer, while listening to live music and supporting a good cause on a random Tuesday night. For the past six years, that’s what I do.

On Tuesday night, April 24, 2018, I had a "Flatbread fundraiser for FARA". Flatbread restaurant, which serves organic brickoven pizza, has a weekly charity night. A portion from the sale of pizza goes to FARA. A keg of beer was donated by a friend and the entire sale also goes to FARA. Joe Parrillo started off the night with some acoustics. My uncle Neil Porter and his band, Grand Theft Audio, closed the night playing some great tunes and my aunt belted out a few songs. I was rolling around from table to table checking out everyone’s pizza! 

This year we added a raffle for U2 concert tickets! That really raised the total.

Throughout the night I saw a lot of family and friends, several FARA Ambassadors, a lot of coworkers and neighbors, and a lot of other families affected by FA. As always it was a great time.

The Flatbread fundraiser is easy. All I had to do was fill out the application, email FARA who sent me a banner and information cards for every table, then I just needed to get people to eat pizza and drink beer on a Tuesday night! The night was a success. We raised $2,800. The place was full all night and the manager said he had never seen such a crowd for a benefit!

Raising money makes me feel proud that I am helping FARA reach our shared goal of putting an end to Friedreich's Ataxia.

ErinONeil sig 17

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GrassrootsToolsInterested in creating a fundraising event of your own? Check out these tools available to help our Grassroots Fundraisers: a "Grassroots Fundraising Guide" and "Grassroots Fundraising Event Ideas." These and much more are available here -> curefa.org/tools.

We want to help you every step of the way! So what's your next move? Learn more about hosting a fundraiser and being part of #StriveForOneFive (our campaign to raise $1.5M through Grassroots efforts in 2018), by connecting with FARA’s Grassroots Event Coordinator to get your event date on our calendar and begin the planning process. ann.musheno@curefa.org

 

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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