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FARAFARA Cure FA

Oktoberfest Party for FARA

FARAoktoberfest“Oktoberfest Party for FARA” was organized by Randy Sisulak and Bill Sabia as an addition to the Claxton Classic Golf Tournament.

Beer lovers gathered together to raise funds for FARA on September 10th. This was the second year FARA was the beneficiary of the Baltimore Leinenkugel Beer Garden, the only Leinenkugel Beer Garden in the country. For a $5 donation, guests enjoyed discounted food and drinks, participation in raffles, door prizes and drawings.

This year, $600 was raised and 100% of those funds will go directly to FARA. Randy says, “Although this event is not a big money maker, it is an opportunity for folks to gather in a relaxed atmosphere and ‘just hang out’ while raising a donation and awareness for FARA. Introducing folks to each other who have a common interest in FARA is the highlight of the event.” 

“The plan is to continue this event next year and help it grow towards helping FARA as much as possible,” says Randy.

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About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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