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FARAFARA Cure FA

Springfield Outback Fundraiser

As my mom and I drove home from a recent fundraiser, I used my iPad to capture the day in words, and couldn't help but smile. I was filled with this overwhelming sense of pride and hope. The fundraiser luncheon at the Springfield, Virginia Outback on June 8th, 2013 was nothing short of amazing. The amount of support that FARA has from the community, as always, is unbelievable, and the drive and determination shown by FARA's staff is rarely ever matched.
This event was attended by all of FARA's six-person staff and board members. Apparently, there was a board meeting in the city of Springfield, so all the members were able to attend the fundraiser. This rarely, if ever, happens and I certainly have never been to a fundraiser where all of the FARA staff were present. They are routinely so busy being spread so thin attending other events, it is not unusual to see only one or two at each event. This a great problem to have, I think. It's a testimony to how many fundraisers there actually are. The more fundraisers, the bigger the chance of any treatment and a cure, and this gives me hope.


I thought, prior to this, I had met most people involved with FARA. But it turns out there were board members at the event I had not met before. I also finally met the only FARA staff member I had yet to meet, Evelyn Wu. I have never met so many people whose only desire is to work themselves out of a job. This is a characteristic that does not go unnoticed by this attendee.
I'm not sure at this point how much money was raised, there is not a final tally yet. Outback had done some fundraising leading up to the event, and I believe they also continued to raise funds afterward. Overall there was a nice turnout attended by beautiful people and hosted by an amazing staff at Outback. There was a live band which provided outstanding music. The Outback food, ranging from chicken and beef, to salad, rice, and cookies, as always, was awesome. Although, you are going to have a hard time making me change my mind about that, since it's one of my favorite restaurants.
My initial thought when reflecting is to say it was another great FARA fundraiser. The fact is, however, all FARA fundraisers are great.

Tom

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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