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FARAFARA Cure FA

Teen Hangouts - March 2018

TeenHangoutsMarch18Join the FARA Ambassadors for a Google hangout for teenagers with ataxia. it is an hour-long web-based hang out. If you don't have ataxia, you are not allowed to participate in the hang out. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going.

The theme this month will be: a discussion about the film The Ataxian. We ask participants to view the film first and bring your thoughts and questions. You can stream the film at:
Amazon
iTunes
Google Play

*Teens who are signed up, with the appropriate consent can, upon request, be reimbursed for renting the film.

We plan to be joined by a couple of our fellow ataxians featured in the film. While we can’t guarantee that, it is the plan and we are super excited.

When: Thursday, March 29th 8-9PM ET (the hangout opens 30 minutes early to try to work out technical issues, please remember we are volunteers not IT professionals, come early if
you’ve never attended a hangout before)

Who: Teens ages 13 to 19 (Please note: all the teens will be together this month, but we plan to host separate hangouts for young and older teens in the future.)

Where: On Google hangouts so if you have access to the Internet and speakers and a camera on your device, you can come!

How: If you are under 18, you need to get your parents or guardian to sign a consent form (click HERE). This should be emailed to jeantw62@gmail.com. Parents/guardians can also ask questions at this email address. Additionally, they can get a consent form here if they need to. Then, email farateenhangouts@gmail.com and request to join. A minimum of a half hour before the hangout opens you will be sent a link to join the hangout. Please note: if you have a free Google Plus account it makes it easier for us to invite you and make sure you get the invitation so, we recommend (not require!) getting one.

Please send an email to either address if you have questions!

See you soon!

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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