Name: Sean and Ryan Miller
Age: Sean (8), Ryan (6)
Where do you call home? Denver, Colorado
Education: Sean (3rd), Ryan (Kindergarten)
Who do the boys live with? They live with their parents and 2 older siblings.
What's a typical day for you? A typical day involves getting ready for school, going to school, playing with friends, playing video games and watching some YouTube.
How long have you known Sean & Ryan are living with FA? Sean was misdiagnosed with CMT at the age of 4. There was something always off with his gait and he fell more than other children his age. It wasn't until we had an abnormal EKG and discovered cardiomyopathy, that the cardiologists suggested FA instead of CMT. We had a blood test done and it was confirmed when Sean was 5.
Ryan doesn't show symptoms (only notice minor balance issues, but would not know unless you know about FA). We wanted to get him tested for FA, because we just wanted to know. Ryan also tested positive for FA when he was 5.
Are there any others with FA in your family? No one else besides Sean and Ryan that we know of.Add a comment