Name: Elizabeth Bowen
Where do you call home? Hilton Head Island, South Carolina, born and raised.
Education: I have attended some college. I used to think it was very important to obtain a degree. But now I feel like as long as I can continue to learn new things, I’m good. I very much hope to write a book sometime in the future.
Who do you live with? I am divorced and have two children. I live with my parents and two out of three of my younger brothers. I am currently in a deeply committed relationship with my cat.
What's a typical day for you? I don’t exactly have typical days. Sometimes I have appointments, head to the gym, maybe I’m doing volunteer work, or maybe I’m spending time with my mom, painting and watching TV.
How long have you known you are living with FA? When I was 12 years old, I went to get a physical from the doctor in order to play basketball for my school and he diagnosed me with scoliosis. I began seeing an orthopedist to treat my curved spine and he believed that I might be suffering from another condition, ordering a DNA test. When I was 14 years old, I was diagnosed with FA.Add a comment