Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

FARAFARA Cure FA

FARA Ambassador Program

The FARA Ambassadors is a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.

Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.

FARA Ambassador Program Mission Statement:

The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

The Ambassador Blog

Subscribe to the Ambassabors Blog

Get new posts from the Ambassadors Blog sent directly to your inbox


This blog is a vehicle for the voice of the FARA Ambassador Program and features posts from Program participants and friends from the FA community on a wide range of topics.

The blog features posts about FARA events, articles about living with FA, spotlights on individuals throughout the FA community, weekly interviews to “Meet the Community,” and more. We hope that you will be inspired, uplifted and encouraged through the FARA Ambassador Blog!


 

Andrea Kiess

 

Andrea & Ramada!At the age of 14, I thought my life was perfect. But the events of the next year turned that opinion upside down.

My name is Andrea and I live in Wichita, KS. As a freshman in high school, my gym teacher noticed that I was "extra" clumsy and uncoordinated while my class was doing a series of physical tests. She had the school nurse observe me during class and the nurse agreed. She called my mom and my mom took me to a neurologist.  Andrea & Ramada (aka the BEST service dog in the world)! After many tests, this neurologist told my mom that I had a virus and would be fine. A year later, my clumsiness and uncoordination kept getting worse, so my mom dragged me to another doctor.

Add a comment
Read more: Andrea Kiess

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure.  Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews etc.

Add a comment
Read more: FARA Ambassadors
Page 64 of 64

SHARE

FacebookTwitterLinkedinShare on Google+
Event E.jpg

 

Archived in
  the Ambassador Blog