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FARAFARA Cure FA

FARA Ambassador Program

FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for treatments and a cure.

The Ambassadors are a service team within the FARA organization. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community. Together we seek to know more about the research and pharmaceutical pipelines being developed through FARA in order to be better prepared to represent the FA community when opportunities arise to educate the medical community and potential donors. When meeting with scientific groups, pharma partners, and the FDA, our purpose is to promote awareness of the patient perspective of living with FA. We believe our dedicated support is key to continued success toward our ultimate goal of treatments and a cure.

FARA Ambassador Program Mission Statement:

The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

The Ambassador Blog

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This blog is a vehicle for the voice of the FARA Ambassador Program and features posts from Program participants and friends from the FA community on a wide range of topics.

The blog features posts about FARA events, articles about living with FA, spotlights on individuals throughout the FA community, weekly interviews to “Meet the Community,” and more. We hope that you will be inspired, uplifted and encouraged through the FARA Ambassador Blog!


 

Brendan Welsh

What's up guys?!
 
I'm Brendan Welsh.  I'm 24 and from Harrisburg, Pennsylvania. I am temporarily living with my parents while I search for a job.  I graduated from West Chester University of Pennsylvania in December where I studied Computer Science (Information Technology) and Environmental Health.  I have a deep passion for all things of environmental consequence.  Those who follow me on Twitter and/or are my friends on Facebook are already well aware of this. 
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Alex Fielding

I am a native New-Englander – born, raised, and still proud to call the Ocean State (RI) my home. I’ve been afforded opportunities to travel nationally for work and internationally for pleasure, building memories with my family in places like Costa Rica, England, and South Africa. Despite my spark for adventure, I am more of a home-body; hiking/camping in the Spring, sailing in the Summer, apple picking in the Fall, and reading a good book by the fire in the Winter (as you can see I need all four seasons!). I enjoy nearly anything with family and close friends, especially cooking (and eating!), music, wrestling with our dogs and nearly anything outside. 
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Abby Yingling

My name is Abby. I am 19 years old (almost 20!) and will be a junior at York College of Pennsylvania this fall where my major is Political Science and minor is Geography. I have a work study job, am involved in Colleges Against Cancer (which plans Relay for Life), and was recently elected to Student Senate for next school year.
 
In my free time, I enjoy cycling on my Catrike (which I received through the AAI), reading, and spending time with my family and friends. Typical stuff!
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2015 Seaside Stride Luncheon

What is more plentiful than the grains of sand on the Jersey coast? Mightier than the crashing waves of the vast Atlantic Ocean?  Hope and determination – shared by many NJ families committed to finding a CURE for FA. New Jersey Seaside Stride is an annual fundraiser for FARA,  each May, in Seaside Park, NJ. Families from all over the northeast gather for breakfast snacks, a stroll along the shore on the famous boardwalk, a delicious lunch hosted by Carrabba’s Italian Grill, a basket auction and games of chance.
Read more: 2015 Seaside Stride Luncheon

6th Annual Race for Matt and Grace Kick-off

The little state of Rhode Island experienced the large influence of the FA community on June 2nd. Not only was it Matt DiIorio’s 34th Birthday, but it was the official Kick-Off Bash for the annual Race for Matt & Grace. Coming into its 6th year, the 5K race in the fall honors native FA’ers Matt DiIorio and Grace Hopkins, serving as an opportunity to increase awareness and raise funds for FARA-backed research.
Read more: 6th Annual Race for Matt and Grace Kick-off
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