Name: Yesenia Ramos
Where do you call home? Edmond, Oklahoma
Education (degree(s): I feel limited on my physical abilities I haven’t considered it, besides I am not sure how I can get financial help for my school and I don’t want to depend on my parents.
What is your relationship status? Who do you live with? I’m single; I currently live with my parents and brother
What's a typical day for you? A typical day for me, stay home, play video games, watch movies, read and write, depending on my mood.
How long have you known you are living with FA? (When and how were you diagnosed?) I was diagnosed when I was 11 years old, so it’s been about 9 years. My mom would notice that I walked imbalanced or like a drunk. She compared my symptoms to my brothers and took me to MDA (muscular dystrophy association) to get checked and tested. They called my mom and told her I came out positive for Friedreich’s Ataxia.
Are there any others with FA in your family? I have an older brother, Aaron Ramos, who is 26 years old.
Describe your transition from walking to walker/wheelchair. When I was in 5th grade I was diagnosed and I remember warning all my friends that in 6th grade (middle school) I was going to be in a wheelchair. When I finally entered middle, all my friends looked at me like what I had was contagious, like they were afraid of me now. I went from popular to an outcast.
What do you like to do to stay active and what type of exercises work for you to stay strong? I do very little physical exercise, but I maintain my self strong mentally. The way I do it is talking to family and friends and giving them motivation.Add a comment