My name is Mary Nadon Scott. I am currently 37 years old and am happily married to my wonderful and supportive husband, Kevin, and together we have 4 children. We live in Vermont, surrounded by family and friends. I was diagnosed with FA in 2002 (I was about to turn 21 years old) when I was on college at The University of Vermont. Despite many doctors discouraging me, I graduated with my bachelor's degree in nursing in 2004. I practiced nursing for 5 years, I am now able to be a stay-at-home Mom.
When I was first diagnosed I was really scared and angry. I did the whole internet search thing for information, shared and grieved with family and friends, and then stopped talking about it. I didn't want to be scared anymore, and thought that if I didn't talk about FA, then I could just deal with it "later"; it would go away. I had heard about FARA, but at the time I didn't want to be welcomed and supported, I just wanted to be left alone and be in denial. As the years went on and my symptoms progressed, I felt really alone. With a rare disease it can be hard to "find someone like you", but when you live in the small state of Vermont, it can be harder. Especially since I'd run away from FARA so many years earlier.Add a comment