Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...


FARA Ambassador Program

The FARA Ambassadors is a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.

Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.

FARA Ambassador Program Mission Statement:

The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact:

The Ambassador Blog

Subscribe to the Ambassabors Blog

Get new posts from the Ambassadors Blog sent directly to your inbox

This blog is a vehicle for the voice of the FARA Ambassador Program and features posts from Program participants and friends from the FA community on a wide range of topics.

The blog features posts about FARA events, articles about living with FA, spotlights on individuals throughout the FA community, weekly interviews to “Meet the Community,” and more. We hope that you will be inspired, uplifted and encouraged through the FARA Ambassador Blog!


Anthony Monaco

MTC Anthony 6Name: Anthony Monaco

Age: 28

Where do you call home? Boston, MA

Education (degrees): Some College

What is your relationship/living status? I live alone in a wheelchair accessible apartment. I have a girlfriend. It’s a new relationship, and it’s going wonderfully.

What is a typical day for you?  I guess it depends on the day really. On Mondays, I run all my errands (food shopping, etc). The rest of the week, I relax at home, stretch, light yoga. I recently got into cooking so I’m honing my skills. Most of my friends are scattered across the country so we’ll play the PlayStation together to hang out. I also go to a lot of shows in the Boston area.

Add a comment
Read more: Anthony Monaco

6th Annual Mother’s Day Race for Christina

Mothers Day Race Collage“There is no treatment or cure. However, there is a strong sense of courage and hope in the FA community, due to ongoing research and clinical trials because of grassroots events like this,” said race organizer Christina Logan.

The 6th Annual Mother’s Day 5K Race for Christina was an absolutely amazing event, held at the beautiful Tyler State Park in Richboro, PA on Sunday, May 13th (Mother’s Day). When registration began at 8:30 am, the morning started out with a chill in the air from a cold and rainy night before. But as friends and FAmily gathered, you could feel the hope and determination in the air. We weren’t going to let a little rain stand in our way to cure FA. This belief that brought us all together on that morning, helped to warm us for the race.

Add a comment
Read more: 6th Annual Mother’s Day Race for Christina

Teen Hangouts - May 2018

FA Teen hangout May 2018Join the FARA Ambassadors for a hangout for teenagers with ataxia. FA Teen Hangouts are hour-long web-based hangouts. *We are now hosting them on WebEx. If you had a hard time joining our Google Hangout, you aren’t alone. We hope you’ll try again on WebEx.

If you don't have ataxia, you are not allowed to participate in the hangout. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going.

This will be our second month of having Teen Hangouts lead by the teens themselves. Madelyn Frederick (she also made our great graphic this month) will be our leader.

This month's theme: What Motivates and Inspires You?

When: Thursday, May 31st 8-9PM ET (The hangout opens 30 minutes early to try to work out technical issues, please remember we are volunteers not IT professionals, come early if
you’ve never attended a hangout before.)

Who: Teens ages 13 to 19 (Please note: all the teens will be together this month, but we plan to host separate hangouts for young and older teens in the future.)

Where: On WebEx so if you have access to the Internet and speakers and a camera on your device, you can come!

How: If you are under 18, you need to get your parents or guardian to sign a consent form (click HERE). This should be emailed to Parents/guardians can also ask questions at this email address. Then, email and request to join. A minimum of a half hour before the hangout opens you will be sent a link to join the hangout on WebEx.

Please send us an email to either address if you have questions!

See you soon!

Add a comment

FA Hangouts May 2018

May HangoutHey, Hangouts participants! We have an update: Hangouts will now be held on a new platform, WebEx....this should help provide more consistent quality with Hangouts! Not much will change, we just won't be using Google+. You don't need to do anything!

While we arrange things, we will be skipping Hangouts in May....NO HANGOUTS IN MAY 2018....but we will return in June!! Thanks for understanding and we hope to see you then!

Any questions? Let us know at

Thanks for Hanging Out with us!
-The Hangouts Team

Add a comment

Carly Magnuson

Carly M2Name: Carly Magnuson

Age: 27

Where do you call home? Sunny South Florida

What is a current goal you have with your education? I graduated from Deerfield Beach high in 2009. I didn't feel the need to go to college
until now, as I am completing early childcare online courses so I can get a job at my mom's day-school. I am interested in taking more online

What is your relationship status? Do you have children? No children of my own, but I have three handsome nephews and a niece on
the way. I live with my parents and younger sister and 2 dogs and a cat.

Add a comment
Read more: Carly Magnuson
Page 2 of 79


Science C.jpg


Archived in
  the Ambassador Blog