Katie Schultz joined the FARA team, as the Patient Engagement Director, in early February. Katie serves as a liaison between the patient community and other FARA stakeholders such as the pharmaceutical industry, academic scientists, and governing bodies to promote understanding of the FA condition and incorporation of FA families in research. Katie brings experience in investment management and biotech industry as well as training as a Genetic Counselor to the effort. Some of Katie’s FARA initiatives include upgrading the FA Global Patient Registry, working with the Ambassador Program and assisting with preparations for the upcoming Patient Focused Drug Development meeting. Katie recently had the opportunity to visit the labs of some FARA Funded Researchers and meet members of the FA community. Her blog about these visits and her learnings follows below.
Dr. David Corey’s Lab at University of Texas, Southwestern Medical Center, Dallas – February 2017
It was exciting to meet Dr. David Corey and his colleagues and tour his lab at University of Texas Southwestern Medical Center. We were able see firsthand the research that they are doing with patient skin cells. FARA Executive Director, Jen Farmer and I gathered with Eric & Lisa Dagely and their sons Jason and Alex, Linda DeSanders and her son Spencer Wright, and David Henry and his parents Dave & Karen, to hear about Dr. Corey’s incredible work researching ways to increase frataxin and to experience life in the lab.Add a comment