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FARAFARA Cure FA

Clinical Care

Collaborative Clinical Research Network in Friedreich's Ataxia

The Collaborative Clinical Research Network in Friedreich's Ataxia (CCRN in FA) is an international network of clinical research centers that work together to advance treatments and clinical care for individuals with Friedreich's ataxia. The network collaborates with pharmaceutical companies, government agencies and other research centers and the patient community to facilitate clinical research and trials needed to identify new therapies.

Each of the CCRN in FA sites is a place where FA patients can go to participate in research studies and to receive clinical care. At every site researchers are conducting natural history studies and clinical trials. The doctors and coordinators at each of these sites are very familiar with medical issues related to FA.  (For example, to learn more about the Cardiac Program at the Children's Hospital of Philadelphia CCRN site, click here.)

Please note that while some of these physicians reside in Pediatrics, they will see adult patients with FA.

To find a CCRN in FA site near you, visit: curefa.org/network


Other Providers

In addition to the CCRN in FA sites, you can find clinical care at one of the following sites with providers who are familiar with FA:

Dr. R. Mark Payne
Riley Pediatric Cardiology
705 Riley Hospital Dr., MSA 2
Indianapolis, IN 46202
Phone: 317.278.6239
Fax: 317.274.4022

Dr. Ralitza Gavrilova
Neurology and Medical Genetics
Mayo Clinic – Minnesota
200 First Street SW
Rochester, MN 55905
Phone: 507-538-3270
Fax: 507-538-7802

Drs. Alex Peciorkowski and Erika Augustine in collaboration with the Rochester Ataxia Foundation
University of Rochester Medical Center
Pediatric Neurology Unit at Strong Memorial Hospital
601 Elmwood Avenue
Rochester, NY 14642
Phone: (585) 275-8762 or 1-888-661-6162

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