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FARAFARA Cure FA

CHOP Idebenone Follow Up Study

Description: Are you one of the 48 individuals with FA who participated in the Phase II Idebenone trail at the National Institutes of Health (NIH) in 2005/2006? If so, The Children’s Hospital of Philadelphia (CHOP) wants to hear from you. It is conducting a new follow-up study to understand how your cardiac phenotype has changed since the NIH trial.

If you agree to participate, the CHOP research team will only be reviewing your prior medical records. There are NO interventions and NO research visits. All communications will be conducted by mail, email, fax or phone.

Key Criteria: You must have participated in the 2005/2006 Idebenone trial. You must have genetic confirmation.

Location: Children's Hospital of Philadelphia

Please review the study flyer below, and if you are interested or have questions,
please contact Felice Wilson at CHOP: 267-426-2995, or wilsonf@email.chop.edu
 


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About the Author

Jen Farmer

Jen Farmer

Executive Director

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