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FARAFARA Cure FA

Friedreich Ataxia - Clinical Outcome Measures

Description: This is a multicenter natural history study to provide a framework for facilitating therapeutic interventions; including the development of valid yet sensitive clinical measures crucial to outcome assessment of patients with Friedreich's Ataxia and supporting genetic modifier studies, biomarker studies, frataxin protein level assessments and a sample repository.

Key Criteria: Ages 4-80 years

Location: Multiple sites (US, Australia and Canada) in the Collaborative Clinical Research Network

ClinicalTrials.gov - https://clinicaltrials.gov/ct2/show/NCT03090789

 


About the Author

Jen Farmer

Jen Farmer

Executive Director

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