Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

FARAFARA Cure FA

Cohort 9, MOXIe, Phase 2 Study of RTA 408

We are pleased to announce that 62 patients have been enrolled in the MOXIe study. Thank you to all those who have contacted coordinators about this study and are participating. The study sites need more volunteers to be enrolled to complete the next and final cohort for Part 1 of the study.

Reata and the clinical sites are preparing for the ninth cohort of 8 patients to test at a dose of 300mg of study drug at the following sites:


· University of Florida, Gainesville, FL
· Ohio State University, Columbus, OH
· University of South Florida, Tampa, FL
· Emory University, Atlanta, GA
· Children's Hospital of Philadelphia, Philadelphia, PA
· University of California, Los Angeles, CA
· Murdoch Children's Research Institute, Melbourne, Australia
· Medical University Innsbruck, Austria


Before you call or email the study coordinators, please note the following:
- You must be between ages 16-40 to participate (some sites are age 18-40)
- You must have a confirmed diagnosis of Friedreich ataxia (confirmed by formal genetic testing)
- You must be able to perform maximal exercise testing on a recumbent bicycle for at least 10 minutes
- You are only permitted to participate in one clinical drug trial at a time. If you are currently participating in a different drug study, and have questions about this rule and your options, please contact the study coordinator or study doctor in charge of the study that you are currently participating in.


**If you are reading this as a parent of an individual with Friedreich ataxia, please note that you will not be allowed to enroll your child in this study if he/she is over age 18. Instead, please forward this email and have your son/daughter contact us directly.

This will be a multi-site study. A list of sites can be found HERE.

Study Coordinators:

University of Florida: Aika Konn/ Tel.: (352) 273-6003; Email: aika.konn@neurology.ufl.edu

The Ohio State University: Louisa Mezache / Tel.: (614)-685-3030; Email: louisa.mezache@osumc.edu

University of South Florida: Kevin Allison, study coordinator/ Tel.: (813) 974-5909; Email: kalliso1@health.usf.edu

Emory University: Becky McMurray / Tel.: 404-712-7013; Email: rmcmurr@emory.edu

University of California Los Angeles: Aaron Fisher 310-206-8153 adfisher@mednet.ucla.edu

Children's Hospital of Philadelphia: Lauren Seyer/Tel.: (267) 426-9738; Email: seyerl@email.chop.edu


Thank you very much for your help and for your ongoing support of clinical research in Friedreich ataxia.
FARA_Patient_Registry@curefa.org
tel: 484-879-6160
www.curefa.org

A Study of the Safety and Effectiveness of (+) Epicatechin for Treating Patients with Friedreich's Ataxia

Description: The purpose of this study is to test the safety and effectiveness of synthetically produced (+) Epicatechin for treating patients who have Friedreich's Ataxia, a neurological disorder.

Key Criteria: Ages 10-50 years

Location: Mayo Clinic (Rochester, MN)

ClinicalTrials.gov - https://clinicaltrials.gov/ct2/show/NCT02660112

Please review the study flyer below, and contact the Study Coordinator with any questions.
 


Can't see this document? Click Me

 

 

A study of walking and balance in Friedreich's Ataxia

Description: The USF Ataxia Research Center, located at the Morsani Center for Advanced Health Care, is looking for people with Friedreich’s ataxia for a research study to evaluate changes in walking and balance in people with Friedreich’s ataxia. The study involves 3-4 single day visits over a 12 month period.

Key Criteria: Ages 7 and older

Location: USF Ataxia Research Center (Tampa, FL)

Please review the study advertisement below and contact the Study Coordinator, phone: 813-974-5909 or email: jshaw@health.usf.edu with any questions.


Can't see this document? Click Me

 

 

Weill Cornell Study of Cardiomyopathy

Description: The Department of Genetic Medicine at Weill Cornell Medical College is looking for patients with Friedreich’s Ataxia for a research study to compare and evaluate different tests in assessing the cardiac dysfunction that can occur with the disease. The study involves a single 2-day visit, with an overnight stay.

Key Criteria: Ages 18-30 years

Location: Weill Cornell Medical College (New York, NY)

Please review the study advertisement below and contact Michelle at (646) 962-2672 or miy2006@med.cornell.edu with any questions.


Can't see this document? Click Me

 

 

Call for Patients with Friedreich ataxia Brain Imaging Study

Call for Patients with Friedreich ataxia Brain Imaging Study

Ages: 6-45

Location: Children's Hospital of Philadelphia (CHOP)

Details: The Children's Hospital of Philadelphia (CHOP) is recruiting patients with Friedreich ataxia (FA) for a brain imaging study in FA to better understand how the brains of people with FA process movement and sound.

Please see the study flyer below and contact the study coordinator Debbie Foerster from CHOP
Phone: (267) 426-7584   Email: foerster@email.chop.edu with any questions.

CHOP Brain Imaging Study Flyer (PDF)

Page 1 of 3

SHARE

FacebookTwitterLinkedInYoutube
Science A.jpg