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The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact:


Title Created Date Category
Teen Hangouts - April 2018 Tuesday, April 17, 2018 Ambassador Blog
Xhesika Peza Monday, April 16, 2018 Meet the Community
Rare Disease Week 2018 Thursday, April 12, 2018 Ambassador Blog
rideATAXIA Dallas 2018 Thursday, April 5, 2018 rideATAXIA Blog
Corey Pemberton Wednesday, April 4, 2018 Meet the Community
Aimee Clifford Tuesday, April 3, 2018 Meet the Community
Patient Perspective: Christina's Experience Participating in a Clinical Trial Monday, March 26, 2018 Ambassador Blog
Brittany Waters Monday, March 26, 2018 Meet the Community
Becky Taylor Tuesday, March 13, 2018 Meet the Community
Kim Swiatek Monday, March 12, 2018 Meet the Community


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