Ways to help
Give the Gift of Research

Dear Friends,

Thank you for growing the breadth and depth of FARA's research work in 2014. Your support has enabled us to expand our existing research programs and launch important new initiatives, funding a record $4 million this year in research! This includes a scientific grant program of 30 new and continued research projects; increasing access and participation in clinical research to 800 people living with FA; and establishing a Friedreich's Ataxia Center of Excellence focused on synergy across discovery, biomarker, and clinical research. You are truly a critical part of the research process. Thank you for your gifts of time, talent and treasure.

As part of the holiday giving season, we are launching our annual Gift of Research Campaign to increase research funding in the amount of one grant, or $150,000. We believe that the knowledge from each research grant gets us closer to our ultimate goal of treating and curing FA. Please consider giving the Gift of Research in one of more of the following ways:

  1. Give the Gift of Research - Consider making a contribution to FARA in lieu of gifts for friends or family. FARA will issue a card along with your tax receipt to present to the gift recipient.
  2. Include FARA in Your Holiday Cheer - Include a note about FARA in your holiday cards to 10 family and friends telling them why FARA is important to you and asking them to make a contribution. Download a sample letter and participation instructions for additional information.
  3. Share the Cheer - Use Facebook or other social media to spread awareness about FA and give others a chance to be a part of this exciting time of finding treatments and a cure. Post one of these statuses:
    • "On Thursday I gave thanks. On Friday I saved. Today, I gave back! Give the Gift of Research at curefa.org. #GivingTuesday #cureFA"
    • "Be a part of the cure this season. Visit curefa.org to give the Gift of Research. #GivingTuesday #cureFA"

Throughout 2014, our fundraising world and our research world converged at several events, conferences and lab visits. At the FARA Energy Ball, gene therapy researcher Dr. Hélène Puccio and a fundraiser living with FA, Gavin Lambert, met and discussed Gavin's foreign coin collection. This simple and sweet encounter wouldn't stand out to a general passerby, but it reinforced for us the strong bond between those fueling the research and those conducting it.

Gavin Lambert and Helene Puccio
Gavin Lambert and Dr. Helene Puccio
share an intense discussion
at the FARA Energy Ball.

We are grateful for our collaborative and caring researchers like Dr. Puccio and the families like the Lamberts who make research possible. Please join FARA and be a part of the cure this season.

Happy Holidays!
Ron Bartek
President, Friedreich's Ataxia Research Alliance

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