Thanks to your generosity and the tireless efforts of our scientists, we reached new milestones in our Friedreich's ataxia research this year. Four new clinical trials were launched in the US, and they recruited participants very rapidly, sometimes in the course of an afternoon. The results of the HDAC inhibitor trial in Italy showed an increase in the frataxin expression that is deficient in people with FA. Scientists in France and the US collaborated to advance gene therapy to the next level of pre- clinical studies for cardiac disease in FA. And, FARA funded over $3 million in research and 28 projects (new and continued research), including a new area of study- frataxin modulation through metabolic pathways. There are more bars in our treatment pipeline advancing further than ever before, and we thank you for your continued support.
One of our FA parents from West Virginia said it best as she and her recently diagnosed teenage daughter headed to Minnesota to participate in a FARA funded MRI study.
Today we are thankful for everyone of you! Anna and I are on our way to Minneapolis to participate in research to CURE FA. This is funded by FARA [and the BAARC Foundation]. So thank you to every person that has ever donated, bought a t-shirt, attended an event, shared a post, etc to help us create awareness and find a cure.
This is where your money is going. Thank you!!
Anna at the University of Minnesota
Dr Pierre-Gilles Henry and Anna getting ready to start her MRI testing.
We are grateful for the support that makes this research possible and for families like the Gordons who put their daily lives on hold to participate in research. FARA has joined charitable partners today, December 3, in a movement to create a national day of giving during the rush of the holiday season. For FARA, #Giving Tuesday marks the start of our Gift of Research campaign. FARA is receiving more research proposals than ever before, and we want to ensure that all good research is funded. Our goal with this Gift of Research campaign is to increase research funding in the amount of one grant, or $200,000, to continue to push forward the amazing research we are currently funding and to fund new promising research.
1. Give the Gift of Research - Consider making a contribution to FARA in lieu of gifts for friends or family. FARA will issue a card along with your tax receipt to present to the gift recipient.
2. Include FARA in Your Holiday Cheer - Include a note about FARA in your holiday cards to 10 family and friends telling them why FARA is important to you and asking them to make a contribution. Click on sample letter to download a template letter and participation instructions for additional information.
3. Share the Cheer - Use Facebook or other social media to spread awareness about FA and give others a chance to be a part of this exciting time of finding treatments
and a Cure. Post one of these statuses,
- "On Thursday we gave thanks. Friday offered great savings. Today, I gave back! Go to CureFA.org and learn how you can give the Gift of Research. #Giving Tuesday"
- "Join me and be a Part of the Cure this season. Go to Go to CureFA.org and learn how you can give the Gift of Research."
We are grateful for this year's research advancements, but there is still work ahead of us to get effective therapies to people living with FA. Please join FARA and be a part of the Cure this Season!
President, Friedreich's Ataxia Research Alliance
You can by donate by credit card online. This processor gives you the option to designate a one time, monthly or quarterly gift (found in the gift information section of the transaction form). Your transaction is safe, secure, and private. The online credit card processor charges 3.3% of your donation for their processing fee.
Benefits of monthly giving and Suggested amounts
You can donate over the phone by calling FARA at (484) 879-6160 (includes international donations).
We will need your name, address and credit card information. The credit card user fee charged to FARA is 2% of your donation.
You can download the Credit Card Authorization form and mail it in.
(includes international donations).
You can send a check or money order to FARA at:
533 W. Uwchlan Ave
Downingtown, PA 19335
Maximize your gift through employer contributions.
See Matching Gift Programs
Questions about Donating ?
If you have any questions about how to donate, please contact FARA at: Phone: (484) 879-6160 or Email: firstname.lastname@example.org
Wiring donations or offering FARA stock options
For specific details about wiring donations or offering FARA stock options, please contact our Treasurer, Terrence Downing.
Phone: (716) 631-5000
Bank fees are typically $15 - $25 per transaction.
Donor Bill Of Rights (PDF)
FARA is rated 4-Stars
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