Patient & Family Resources

Meet People with FA

Evan
Evan

My body has plenty of strength to do what I need to do, but it doesn't have the coordination to make it happen. FA makes me realize how much I can push myself mentally and physically because you find out how much strength God has given you. I think of it as though God has chosen me to have FA because he knew I was strong enough to deal with this disease, and it has made me a stronger person in every way. I don't view having FA as a negative thing in my life. My purpose is to be one of the first people to beat this disease because of my determination. I feel like you have to believe you can beat it or there's no way it can ever happen. I have faith. I know even if I don't beat it, I still serve a huge purpose in fighting FA.

I love to workout to stay physically strong. I eat healthy because I know it makes a difference in how I feel every day. I like to play video games, and I'm a huge WWE fan. I went to Wrestlemania in Miami this past year with my Dad and brother Graham. I'm proud of the fact that I'm a good student and do well in school.