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FARAFARA Cure FA

Scientific Symposium

Scientific Symposium

Starting on Thursday, September 17, 2015 Save to calendar

Categories: Energy Ball

 

Thursday, September 17, 2015
at 5:00 pm


Understanding Energy for a Cure
Friedreich’s Ataxia Scientific Symposium


Click here to RSVP

Friedreich’s ataxia (FA) is a progressive neurodegenerative disease of children and adults for which there is presently no approved therapy. FA symptoms include neurologic, cardiac, orthopedic, and endocrine dysfunction.

We invite you to join us for a night of scientific discussion bringing together the FA community and national leaders in FA research.
 
Please note the new location!
 
 
Symposium attendance is free.
Watch the live stream of the symposium here: http://www.ustream.tv/channel/curefa
 
5:00 – 6:00pm
Poster Session / Cocktail hour
 
6:00 – 6:20pm
Welcome and Introduction to the Evening & USF FA Initiative
Dr. Judy Genshaft
USF President
Theresa Zesiewicz, MD FAAN, Moderator
Director, USF Ataxia Research Center
 
6:25 – 6:40pm
Building an FA Research Community and Progress of Research
Jennifer Farmer and Ron Bartek
Executive Director and President, FARA
 
6:40 – 7:00pm
FA Treatment Pipeline
Sanjay Bidichandani, MBBS, PhD
Chair of Genetics, Professor of Pediatrics, University of Oklahoma College of Medicine & FARA, Board of Directors
 
7:00 – 7:45pm
Panel Discussion: Engagement with Biotech and Pharma
Panelists:
  Colin Meyer, MD, CMO, Reata Pharmaceutical, Inc.
  Jeffrey Sherman, MD, CMO, Horizon Pharma, Inc.
  Robert De Jager, MD, CMO, Retrotope, Inc.
  Jodi A. Cook, PhD, VP Operations, Agilis Biotherapeutics, LLC.
  Moderator: Sanjay Bidichandani, MBBS, PhD
 
7:45 – 8:15pm
Patient Perspectives on FA and Research/Clinical Trial Participation
Participants: Erin O’Neil, Jade Perry, Kendall Harvey, Chris Nercesian
Moderator: Clifton Gooch, MD FAAN, Chair of Neurology, University of South Florida Morsani College of Medicine
 
8:15 – 8:30pm
Closing Remarks
Clifton Gooch, MD FAAN
 
Watch the FARA & USF Health Scientific Symposium recorded live on September 4, 2014:  https://www.facebook.com/CureFA/app_196506863720166
 
2015-09-17 15:00:00
2015-09-17 19:00:00

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