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FARAFARA Cure FA

Understanding Energy for a Cure Symposium ***CANCELLED***

Understanding Energy for a Cure Symposium ***CANCELLED***

On Thursday, September 14, 2017 Save to calendar

*** ATTENTION ***
DUE TO HURRICANE IRMA - THIS SYMPOSIUM HAS BEEN CANCELLED.
The FARA Energy Ball on Sept 16th will be taking place as scheduled.

 
FA Research is a global effort and involves diverse projects and approaches from the lab bench to the clinic. One key feature of the FA research community is collaboration and partnership. We will introduce you to some academic and industry researchers working on FA to demonstrate the range and depth of research projects needed to advance treatments for the condition. In this symposium, you will also learn about each investigator’s personal commitment and passion for FA science and meet a dynamic patient panel who will share their own perspectives on research.

Click Here to RSVP for the Symposium.

FARA 2017 Symposium at USF Health

 

2017 Symposium Agenda

5:00pm - 6:00pm Reception & Cocktail Hour

6:00pm - 6:10pm Welcome - Judy Genshaft, PhD, President, University of South Florida

6:10pm - 6:30pm USF Ataxia Research Center - Theresa Zesiewicz, MD, FAAN, University of South Florida

6:30pm - 7:00pm Patient Panel - Living with FA & Perspectives on Research Participation
Moderators - Kyle Bryant and Sean Baumstark

  • Michael Gehr, Oklahoma
  • Kate Walker, Louisiana
  • Jean Walsh, Massachusetts

7:00pm – 7:30pm Scientific Panel - FA Treatment Approaches
Moderators - Kyle Bryant and Sanjay Bidichandani

  • Carole Ben-Maimon, MD, Chief Executive Officer, Chondrial Therapeutics
  • Jodi Cook, PhD, Chief Operating Officer, Agilis Biotherapeutics
  • Colin Meyer, MD, Chief Medical Office and Vice President, Product Development, Reata Pharmaceuticals
  • Robert J. Molinari, PhD, Founder and CEO, Retrotope

7:30pm - 8:00pm Advocacy Organization Panel
Moderator - Sean Baumstark

  • Executive Director - Jen Farmer , MS, CGC, FARA
  • Scientific Director - Sanjay Bidichandani, PhD, University of Oklahoma College of Medicine Department of Pediatrics
  • Board Director – Pat Ritschel, FARA

8:00pm - 8:10pm Closing Comments - Clifton Gooch, MD, University of South Florida

 

 

Video of the 2016 FARA Research Symposium at USF
Stream Online

2017-09-14 00:00:00
0000-09-18 20:00:00

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