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Starting on Thursday, June 28, 2018 Save to calendar
Categories: FARA Grassroots Event
It’s not every day that kids step up to make a difference in their communities and work toward something bigger than themselves. Fine Arts for Friedreich’s Ataxia (FA for FA) is a Sioux Falls student run, led, and directed organization devoted to raising awareness and money for Friedreich’s Ataxia (FA) research.
The idea for FA for FA began with a beloved girl, Raena Brendtro. Raena, a fellow musical theater performer in our community, was diagnosed with FA on May 30th of 2013. FA is a debilitating, life-shortening neuromuscular disorder that affects about 50,000 people worldwide. Students from the Sioux Falls area were touched by her struggles and felt that far too many people were unaware of the life altering effects FA has on people. To inform the community about the seriousness of Friedreich’s Ataxia through creative means, FA for FA was born.
FA for FA will be producing the fundraiser, Curtain Call for a Cure, at the Orpheum on Thursday, June 28, at 7:00 p.m. for $15. The event features high school performers staging musical theatre numbers from well-known Broadway musicals as well as informing the audience about FA. The goal for Curtain Call for a Cure is to raise $10,000 to directly donate to the Friedreich’s Ataxia Research Alliance (FARA) for FA research. FARA is dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s Ataxia.