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fara - Friedreich's Ataxia Research Alliance
Evan's Story

Event
3rd Annual Race for a Cure for FA
May 20; Cincinnati, OH

Evan Michael Luebbe Fund Web Site

In the News
Shawnee Student Gets Wish Granted
His Wish Granted, Boy Gets School Send-off
[ posted on news.enquirer.com ]

Evan is a wonderful 8 year old whose smile can light up the room. He was diagnosed with Friedreich's Ataxia on October 7, 2004 from a heart murmur heard at his 8 year checkup. His passion is NBA basketball. Give him a player's name and he can tell you what team he plays for and what position. His dream is to play in the NBA someday. Evan loves to hang out with his little brother Graham (5), play Gamecube, read, go to the park and shoot baskets. His two cats, Simon and Eli, love him to pieces! Evan is in second grade and is an excellent student.

This is Evan.  He has Friedreich's Ataxia.

Evan's favorite foods are his mom's chocolate chip cookies, steak, meatloaf and mashed potatoes. Our fundraising journey to find a cure has begun and we won't stop until the doctors cure FA!

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FARA — Friedreich's Ataxia Research Alliance

P.O. Box 1537, Springfield, VA 22151 | (703) 426-1576
fara@CureFA.org | www.CureFA.org