My name is Katelyn and I live in New York I am a 17 year-old in my last year in high school. I too have FA. It has been hard to live with and I get very frustrated at times to where I just want to give up.

All my family and love ones encourage me to keep going and stay strong so I do not for me but for them. I started noticing there was something wrong with my coordination when I was 10. I was first sent to an ENT doctor and then I was sent to a neurologist and that's when I found out that I have FA. Both my family and I were devastated, however we do our best to stay strong. I am not yet in a wheelchair; however I know I will be soon. I just accept everything that is going to happen. I live life to the fullest because you only live one and this is the life God gave me.