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Grassroots Fundraising


When FARA was first established in 1998, grassroots fundraising by volunteers across the country was the main source of FARA’s early research funding. For the past four years, Grassroots fundraisers have continued to be a huge force in the fight to cure FA by heeding the call to raise over $1 million each year as part of Mission 1 Million. We have repeatedly surpassed the $1 million goal due to the collective efforts of all of our FAbulous grassroots fundraisers.  You’ve helped FARA fund more research and act on the urgency we all feel, and we would like to continue this momentum by setting our goal for $1.5 Million- a campaign we are calling #StriveForOneFive.

You can be a part of this campaign by participating in an existing fundraiser or  holding an event of your own. Be sure to share the events you attend and host on social media using #StriveForOneFive!

Attending A Fundraiser

When you participate in a fundraising activity, you help FARA grow its community and forge a stronger fundraising effort to battle FA. You can find a complete list of Grassroots events, as well as The Energy Ball and rideATAXIA events, at

Holding A Fundraiser

If you’re interested in hosting your own fundraiser, FARA has an experienced grassroots fundraising team to mentor you and help you through the process of running your own fundraiser. Start your fundraising endeavor by filling out the Grassroots Fundraising Form and reaching out to Ann Musheno, FARA's Grassroots Event Coordinator, at The FARA team is happy to help you every step of the way!

If you are deciding what type of event you want to host, the Grassroots Fundraising Event Ideas Booklet can show you some of the different types of fundraisers you can do and the level of commitment required for each.

When you have an idea of the type of event, the Grassroots Fundraising Guide can provide written guidance on how FARA can support your efforts, how to comply with IRS tax codes with regard to fundraising activities and FARA’s gift acknowledgment practices. This is by no means an exhaustive guide and more materials are available at and through the Grassroots Event Coordinator.


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Join us at
 a Grassroots Event

  • FArm to Table
    Saturday, February 29, 2020
    Buti T Ful Farms 4101 Mud Lake Rd, Plant City, Florida 33567

  • Hope for toMORROW 2020
    Saturday, March 7, 2020
    Bryn Mawr School, 109 W Melrose Ave, Baltimore, MD 21210

  • A Night to Fight FA: Round 4
    Saturday, April 4, 2020
    Akerson Tower, Navy Marine Corps Memorial Stadium, 550 Taylor Ave, Annapolis, MD 21401

  • N.J. Seaside Stride
    Saturday, May 16, 2020
    Tri-Boro First Aid Squad, 61 J St, Seaside Park, NJ 08752

  • Cure FA Soiree
    Saturday, May 16, 2020
    Edmond Conference Center, 2833 Conference Dr. (Covell & I-35) Edmond, OK 73034

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