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Welcome
Hello, and welcome to the Web site of the
Friedreich's Ataxia Research Alliance [FARA]. This site is
designed for patient families, scientific
investigators, and healthcare professionals
interested in Friedreich's Ataxia [FRDA]. The materials provided
here include basic background information on FRDA
[its cause, symptoms, and potential treatments],
summaries of current research, scientific abstracts, links to publications from scientific and
medical journals, guidelines for research grant applications, explanations of current clinical
trials and ongoing studies, FARA Updates, information helpful to patient
families, and information on how you can make a donation or raise funds to support
the research.
Research Pipeline
FARA has supported and is supporting these efforts by providing various combinations of direct funding, essential clinical infrastructure, advocacy and awareness efforts.
› View the Research Pipeline
Spotlight on...
› Making the Best of a Bad Situation
› A Prom Night Promise
› Keeping the FAITH
› Request for Applications: Mitochondrial Therapeutic Approaches Research Award sponsored by Friedreich's Ataxia Research Alliance and the Muscular Dystrophy Association
The Friedreich's Ataxia Research Alliance (FARA) and the Muscular Dystrophy Association (MDA) invite proposals, under a competitive Request for Applications (RFA) process, to award a grant focusing on critical issues or hypotheses that advance...
› CLASS ACTS
› The Race Against Time for Friedreich's Ataxia — A true test of endurance
› Ataxia rider on the attack
› Support Research for Friedreich's Ataxia
› John Luth and Randy Mann Ran the Boston Marathon in Support of Their Friend
› eAdvocate Spring Issue
Like everyone in the FA community, FARA is excited about the extremely promising clinical trials that are currently under way or on our doorstep.
› Congressman Andrews FA Awareness Day Resolution
› New FARA Position: VP / Chief Executive for Science
FARA is seeking a Vice-President / Chief Executive for Science to help advance their scientific goals. Key responsibilities include: Chairing the FARA Scientific Advisory Board, Overseeing the FARA Grant Program, and Serving as FARA Scientific Ambassador to the larger research community.
› 2008 Kyle Bryant Translational Research Award
The Friedreich's Ataxia Research Alliance (FARA) and the National Ataxia Foundation (NAF) invite proposals, under a competitive Request for Applications (RFA) process, to award a grant focusing on pre-clinical and clinical investigations...
› Sean Baumstark, co-organizer of Ride Ataxia II, was selected to participate in the passing of the Olympic Torch in San Francisco on Wednesday, April 9. 536 people applied to carry the torch, and Sean was one of the thirty-five chosen in San Francisco.
Click on the following links to read and view press coverage:
http://www.nbc11.com/newsarchive/15795809/detail.html
http://cbs13.com/video/?id=32165@kovr.dayport.com
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