The Friedreich’s Ataxia Research Alliance (FARA) serves as a catalyst in public, private, scientific and patient-family communities, to build worldwide support and collaborations that drive medical research advances for Friedreich’s ataxia.
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Newsletter
SCIENTIFIC NEWS
- Idebenone in Friedreich's ataxia
- Visual system involvement in patients with Friedreich's ataxia.
- Iron-sulfur cluster biogenesis and human disease.
- November 9, 2008
Jonestown Men's Choral Concert
Jonestown, PA
dwood02@comcast.net - November 15, 2008
Stephanie's Hope Holiday Boutique
Santa Clarita, CA
cnsmags@yahoo.com - December 13, 2008
Neyland Family Fight to End FA Party
Fort Stockton, TX
ruth_neyland@hotmail.com - 2008 Friedreich's Ataxia Symposium presented by the Children's Hospital of Philadelphia
December 5, 2008: A Celebration of Spirit, Hope, and Community Reception (Front) (Back)
December 6, 2008: Friedreich's Ataxia Symposium - Ride Ataxia III Registration Now Available! March 16-19, 2009 Portland, OR to Seattle, WA.
- New Website Resource Available: "Issues to Discuss with Your Doctor Prior to Surgery in FA Patients" by Mary-Lisa Orth
- Santhera Enrolls Last Patient in Pivotal US Phase III with SNT-MC17/Idebenone in Friedreich's Ataxia
- Social Security Announces Nationwide Launch of Compassionate Allowances Process Will Fast Track Applications For People with Cancers and Rare Diseases
- Keeping Kids Healthy Living with Friedreich’s Ataxia
UPCOMING EVENTS
FARA NEWS
Online grant submission allows for faster evaluation and approval of applications.
Listings of ongoing trials -
Join the Patient Registry which matches patients to the appropriate clinical trials.
You can have an impact on research advancement by providing critical funds. REQUEST KIT
