Patient & Family Resources

Meet People with FA

Linda
Linda Johnson

What do you say when someone says "Describe yourself"???
I guess this is my blurb...

50-year-old woman, wife who is still infatuated with her husband, mother of two fun teenagers (one in college!), “retired”, world traveler, book club member, dinner club member, church-goer, live in Central New York in a comfortable 100-year old house in the country with my family, dog, cat, rabbit, and chickens... and, oh yeah, I have Friedreich’s Ataxia.

Life changed when I was diagnosed with FA at the age of 40... just ten years ago. That’s when I really started to appreciate the time we have. I have always been a bit "Carpe diem," but there’s nothing like being diagnosed with a progressively debilitating disease to get you moving!

We started travelling more, I took a new position at work that required/allowed me to travel internationally. The motive for traveling internationally was at first pragmatic... I should do it as soon as I can, before my symptoms make it too difficult. But it has proven to be such a positive experience for us all! I “retired” last year, and now stay at home exercising, cooking, mowing the lawn, and, truly, enjoy every minute! It’s nice to smell the roses! And we still travel!