Name: Kim Swiatek
Where do you call home? Tucker, GA
Education: I chose being a mother and housewife. Progression has stopped any other career goals.
What is your relationship status? Do you have children? Raised a wonderful son, I also have a beautiful daughter-in-law and granddaughter. I’m divorced and live with my boyfriend of 9 years.
What's a typical day for you? Basically get up, eat, get ready for the day with my caregiver. Play on computer, watch Netflix then sometimes get out and go shopping.
How long have you known you are living with FA? I was diagnosed at the age of 25. It was in March of 1992 before the gene was discovered. I went through 5 neurologists who didn’t have a clue about my balance and coordination. Finally found a doctor in Atlanta who knew right away what it was, as she had FA patients.
Are there any others with FA in your family? My sister had it. She passed away in 2016.
Describe your transition from walking to walker/wheelchair: I noticed clumsiness in High School and could not physically keep up with my peers. I would hold on to furniture and people as it progressed, then started using a walker after I was diagnosed. I used it for 5 years before I realized I needed a wheelchair. The hardest transition was having to give up driving, which I did at the same time. I realized I had to give it up after having a wreck with my son in the car. Add a comment