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FARAFARA Cure FA

Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
 

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!


Naomi Houghton

NaomiName Naomi Houghton

Age 24

Where do you call home? British Columbia, Canada

Education: I have a diploma in Occupational Therapist Assistant & Physiotherapist Assistant, FA will ultimately render me unable to perform my job as a rehabilitation assistant, but for now it has allowed me to build better rapport with my clients. I can now relate to their struggles and offer encouragement to them from a genuinely understanding place.

What is your relationship status? I live with my two best friends and greatest supports: Michael, my common-law partner, and Memphis, my Teacup Yorkie.

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Colton Watson and Family

Colton 3Name: Colton Watson

Age:10

Where do you call home? Littleton, Colorado

Education: 5th Grade

Who do you live with? I live with my parents, two older brothers, and dog Jaxon.

What's a typical day for you? I get ready for school, do my physical therapy exercises and stretches, go to school, come home and do homework, and then play video games or watch YouTube.

How long have you known you are living with FA? I went to the doctor in May and was officially diagnosed with a positive genetic test in July. I showed signs of balance issues for a couple years prior to that.

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Kyle Waterman

Kyle WatermanName: Kyle Waterman

Age: 20

Where do you call home? Cedar Rapids, Iowa

Education: I attend the University of Northern Iowa. I plan to major in Statistics and to minor in Finance. My ultimate goal is to do statistics for sports. FA has made it impossible to play sports, so I want to be involved in any way.

What is your relationship status? Do you have children? Single with no kids.

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Michael Pelletier

Michael mtcName: Michael S Pelletier

Age: 57

Where do you call home? New Haven, CT

Education: GED

What is your relationship status? I am Divorced. I was married for 15 years and have 3 children. I currently have a girlfriend. I live alone. Help comes for me in the morning.

What's a typical day for you? I wake up around 11:00-12:00. Then I eat breakfast and exercise with weights. Help comes and cleans the house and I go for a walk. I am looking for a new apartment. I am usually up until 1:20 am.

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Johnna Wheeler

JohnnaName: Johnna Wheeler

Age: 30

Where do you call home? New Orleans

Education: I have my high school diploma, and I'm working towards going to college for Physics and Astronomy.

What is your relationship status? Do you have children? Single and happy! No kids, but I have 4 nephews that I love like my own!

How long have you known you are living with FA? I was diagnosed when I was 7. My teacher at the time noticed that I had balance issues, and suggested that my parents take me to see a neurologist.

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